Author’s note: This story is highly inspired by my experiences and feelings. I like to tell people it’s 95% true.
“Body is disabled. Irish works perfectly,” my T-shirt screams in bold letters. That’s pretty much all you have to know about my personality. In the past seven years, my body has thrust my neuropathy from invisible to visible, which necessitated my buying Noola the Rollator. Yes, that’s her name. She’s my little black hot-rod with flame decals, headlights, the most obnoxious bell known to humankind, and cool rear reflector tape. Noola’s my wheels. I only got her a few months ago, and I feel prouder than a teen with their own car.
The first few weeks I took her out for a spin, I noticed the people in my suburban neighbourhood seemed super friendly—after almost 18 years of our living here. Wow, so many smiles. Did someone get a new tax break or something?
However, when the grins popped up outside my ’hood, I realized a possible truth. People were smiling at me most probably because they felt they’d come across as douchebags if they didn’t. After all, I’m a crip.
I still cringe a little at that word, but mostly, I love it. There is something about repossessing a slur for your own empowerment. Nobody can hurt you with it if it makes you feel awesome. And I feel pretty good today as I roll about with Noola. Crisp air, my favourite.
Ah, there’s nothing like extreme sports, I think to myself as I approach the third circle of hell. That’s a three-way stop where the overly-scheduled denizen in minivans express their impatience at having to wait an entire half-minute for me to get to the other side. I feel bad for cutting into their mercurially hot yoga class time. I’m sure each second of sweating to ethereal music to take their mind off their entitled spawn is far more precious than my crossing over unscathed. Poor souls.
Years ago when my neuropathy was bad and I hobbled along without a cane, drivers constantly gestured at me to move faster. Yeah, sorry, doods. These boots are made for walking, but not so much my legs. It took me the longest time to realize I needed a walking stick, then even longer to clue in that a rollator would give me a much better quality of life. A friend who used that mobility device finally convinced me to buy one. Without her advice, I’d be housebound. So, yay for medical professionals who told me to exercise more and suggested exactly nothing to help me do it.
Anyway, once I daredevil my way to the other side of the road, feeling totes badass, I know I have another obstacle to face. The massive intersection on the main throughway that connects the ’burb from north to south. I cannot even keep track of how many lanes there are. All I know is wherever I cross, there’s always a car on my butt. Issuing tickets for cars who tailgate mobility devices should be a thing.
The only reason I’m attempting this at all is because the snow hasn’t begun yet, and I can still get out on my own. Okay, so. Let’s push this wee button and get to the median at least. Then we can push the next one and make it to the mall. Ah, crap, is there a ramp down that path? I forgot. Oh good, there is. The ’burb planners love their stairs.
Traffic is not so bad today, so I might make it all the way without—and I realize nope. Hello, minivan with the driver who’s giving me a filthy stare. Eat shit and have a nice day! The vehicle zooms past me with a passive-aggressive fierceness I’ve come to know and despise around here. Those yoga classes must hand out free orgasms to first arrivals.
Right, so why all the yoga bashing? It’s sort of a thing when one has a mobility issue. You get told about three billion zillion times how yoga can “cure” you. You know, because having a disability must totally be my own fault. The irony is that I do yoga stretches to loosen up my stiff connective tissues, which brings my pain level from I WANT TO EFFING DIE to about a six out of ten on the pain scale. With my condition, I can only manage pain. Elimination of it will happen after I leave this world. Most people in my situation know this. We’re chronic pain warriors.
Now then, back to the adventure of crossing the road to get to a coffee shop. The ramp down the slope is a mix of interlocking brick and cobblestone, because I guess it looks pretty, but I need to stare at the ground constantly in case Noola’s wheels get caught in a misalignment or wide crack on the ground. On several occasions because of “aesthetics” around curbs, Noola’s wheels fell into an indentation and the rollator bucked, nearly sending me flying. Also, because of the suburban need for beauty over function, concrete ribbons finishing off curbs that slightly ramp down to the street can cause my rollator to get stuck. I have a foot pedal to lift Noola to clear a curb, but sometimes I cannot see any sunken concrete on the street, especially when it’s covered with weeds. One time, Noola bucked and then came down on my foot. Thankfully, no bones were broken, but it could have happened.
So, yeah, all you cliff climbers, I take risks, too!
And now, the mall parking lot. This is where I feel like I’m a character in an old video game who hopes not to get smooshed by a constant flow of cars. I scan for the safest path to get to the coffee shop that’s situated in the centre of the lot, but to one side. There’s a sidewalk up the slope and stairs down to the café for safe access—for everyone but people with accessibility devices. I need to traverse the lot, where cars are constantly vying for spots. There’s a roundabout way on a sidewalk that would take me to a crosswalk, then a median, but I’d still have to cut through the lot to get to the place. I know, right?
Someone pulls into an accessible spot near the pharmacy. She smiles at me. I smile back. There’s this understanding, like we’re part of the same crew. We are, really.
Okay, I can so do this! I muster up the courage, straighten my back, and take Noola forward. The path through this part of the lot is clear so far.
I nearly jump out of my skin. I turn around to see some jerk wanting to get into a spot I’m passing.
“Are you fucking kidding me?” I shout.
He seems stunned. Maybe these folks don’t say fuck a lot. I’m from Verdun, Québec. Swearing was our dialect.
I press on and stop with a pregnant pause at the drive-thru. Yeah, I really don’t get the drive-thru coffee thing. I decide to hope it’s for people like me who find it safer and more convenient to get their hot beverage. Or for parents with a car full of kids. That would make sense.
I’m on the sidewalk where the shop stands. It has a nice ramp up, so whoopee for that. I notice a customer going into the place and I cry, “Hey, can you please hold the door?”
The door closes. “I guess not.” Perhaps he couldn’t hear me. I need to believe that. No matter, because there’s an accessible door opener. I press it.
Nothing. Maybe I hit it funny, so I try it again. Huh. One more time and . . . nope.
Three young people are sitting on a bench outside the shop, staring into their phones. They are oblivious to me. Hey, I’m a social media shark, too, but you know, sometimes look up for a change.
I shift Noola and reach for the door myself. It’s vacuumed-sealed, I swear.
“Seriously?” I shout.
The three phone gazers look up, startled. Before I can say anything more, a barista from the shop opens the door from the inside.
“Sorry about that! It doesn’t work,” she says with a perky tone.
“You know, it’s really hard for people with mobility aids when these openers don’t function,” I say.
“Sorreee,” she says again, trying to make it sound even more bouncy. “We don’t know when it’ll be fixed.”
“But it,” I begin and get cut off with:
“Just ask one of us to open it for you when you leave!” Then she boings along back to her station.
At this point I’m feeling meh and decide I’ll go to the bathroom, then head home. I roll Noola to the accessibility washroom. It’s occupied, so I wait.
After a minute or two someone walks out and spots me with my rollator. I understand all about the variety of disabilities we can’t see, so I don’t pass judgment when someone without a mobility device exits that washroom. I had to use it when I didn’t have my cane, because I’d lose my balance trying to navigate narrow stalls. The only time I get suspicious is when the occupant’s expression mirrors that of someone who’s been caught with their pants down. (Fortunately, this is only a metaphor at present.)
The door is held open for me. I thank the person and go in to do my business. After I wash my hands and collect Noola, I see there’s no automatic door opener to get out. You know, if a business is going to bother with accessible washrooms, then maybe give us pee-ers and poopers the independence to come and go as we please, mkay?
Once again, I shift Noola a little and manage to get the door open. Keeping it open with one arm while I negotiate the rollator with the other is something I attribute to a super power. At least thinking this way keeps me from screaming like a banshee on a bog.
I really want a gluten-free rice square for my troubles but figure it’s better that I just go. No, I’ll medicate with that rice square. I pick up one. Then another. Just in case the first one doesn’t take.
On my way out, someone else rushes past me to the door and lets it slam shut. What is wrong with people? How have we become so tunnel-visioned that we can’t see past our own noses?
I just stand there, and the perky barista flies over and opens the door for me.
“Have a nice day! We hope you come back soon!”
I blink and roll out the door. The smartphone gang are still on the bench. They seem a bit intimidated by me. Probably think I’m the crazy angry old lady with a pushable wheelchair.
Good. Let them think that.
I take a bite of my snack and drop it into Noola’s basket. Checking both ways, I head into the parking lot. A car is behind me in no time, and of course, there’s honking because I’m in front of a spot.
I lift my right hand off Noola’s handle and without looking back, give the driver the finger.
Then I reach into Noola’s basket and take another bite of my treat before I press on.
The car waits silently.
To Get to the Other Side © 2017-2018 Cait Gordon. All rights reserved. No part of this story may be used or reproduced in any manner whatsoever without permission except in the case of brief quotations in critical articles and reviews. For more information, contact Cait Gordon.
8 thoughts on “To Get to the Other Side”
This is so true, and people who are not in our demographic are not going to understand it how much it’s a pain in the butt.
Love the Frogger reference, and while yoga is good, it’s not going to fix broken nerves and bones.
City planners should be required to take courses on accessibility – seriously. The crap we have to go through sometimes is dang near a contravention of human rights. 😦
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Yeah, someone in my writing group said that people without disabilities might not get this story. I guess that’s what own-voice works are for: validating similar voices and hopefully teaching others about our experience. I find myself analyzing curbs all the time. I’ll be writing my city about these things, because OWOWOWOWOW!
I dated myself with that Frogger reference, but it totally fits what I go through. I can almost hear the music and blips in my head!
“Young Alex would love to take your order, they work at the coffee shop just up the street. They’re perky and annoying with a smirk the size of Texas…” – Paraphrase of Arrogant Worms song.
Suburbia. Oh, joy, oh, bliss. Definitely not walking accessible, especially with a mobility device. They’re just nasty and designed by people with no clue what it’s like to walk. It’s all about getting to the yoga or kids’ hockey.
Like, WHAT’S WITH ALL THE YOGA? I mean, I do some for physiotherapy but SHEESH!
I love love love this short story! The world needs more work like this! You perfectly detailed what it’s like trying to move around with a disability. Not only that, you do it with heart and humour which is not something everyone could do. Thank you for this. I heart this story! 🙂
It matters so much to me to get validation from such an accomplished author (and fellow spoonie) as yourself. Thank you, as always!
This is an awesome blog. Too funny. Sadly very true. As for yoga, well I have been doing it judiciously now for 125 days and so far my amputated leg (since the last 9.5 years) has not started to grow back but who know, maybe another 400+ days and I will see signs. What I particularly like is being screamed at by clerks who assume that because I live my life in a wheelchair I absolutely must be limited mentally and deaf as well. Maybe we should collectively write a book! Thanks for caring.
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Oh, gosh, I laughed so hard! You are just a wonderful human being. Thank you so much for your feedback! ❤